Welcome to Down Syndrome Magazine

If you are here, chances are you have either received an ultrasound with soft markers, recently had a newborn diagnosed with the extra chromosome, or have a special loved one in your life who was born with something extra. We welcome you with open arms because the journey you are about to walk down is an amazing one! You may be going through the grieving process of shock, denial, and guilt that many parents go through after receiving a Down syndrome diagnosis. Down syndrome, also known as Trisomy 21, is not something that you “caused” or “inflicted” upon your baby. It’s a genetic abnormality that randomly occurs during cell division giving your baby an extra copy of chromosome 21.

It’s okay to cry. It’s okay to feel broken right now. These are natural feelings that many parents experience. Life is taking you down a difference road than you expected. It’s common to fear things that we don’t understand. I can promise you that your future self will feel quite different than you do at this very moment if you will let go of fear. Fear of the unknown. Fear of what the future will hold. Fear of what others will think. Fear of how to deliver the news to friends and family. So many fears that holds us back from incredible experiences we never knew we would love and feel blessed for having in our life. Having a child with Down syndrome is a privilege I wish everyone could enjoy. If there were more people like these amazing individuals, our world would be a happier place.

I hope so many things for you at this very moment. I wish I could hug each and every one of you who is at the beginning of this journey and remove all of the fears you are experiencing. I would tell you how truly lucky you are to have been chosen to be a guardian to one of God’s special angels. The joy that lies ahead of you is beyond anything you can even imagine. Yes, you will have bad days just like any other parent has had. Life won’t always run a smooth course. It never does. Please know that you are not alone! You have the love of a wonderful community cheering you on.

Our little Ellie turned our world upside down and inside out and I wouldn’t change it for the world! I thank God ever day for allowing us to walk this journey with one of his precious angels. Take a deep breath and browse through our  site. You can even check out how “normal” our every day life is with Ellie. We are definitely more alike than different in so many ways.

Read more about us and why we are building the magazine

CONNECT WITH OTHER FAMILIES

Here are some of our favorite Down Syndrome related videos

What is Down Syndrome?

This is a great video that describes the genetics behind Down Syndrome and how the extra chromosome happens. Osmosis creates awesome easy to understand medical terminology videos.

"Down Syndrome 101"

This is the perfect video to share with kids that describes what Down Syndrome is and how individuals with Down Syndrome are alike and different from other kids.

Kelle Hampton - Bloom

This was the first video I watched right after Ellie was born. I remember so vividly laying in the hospital bed with my laptop on the table as tears streamed down my face. Truth so eloquently presented in Kelle Hampton’s Bloom trailer couldn’t have found me at a more perfect time. If you haven’t checked out her blog yet, it is a must read!

Ruby's Rainbow Spotlight on Kelle Hampton

Ruby’s Rainbow is an amazing non-profit that focuses on continuing education for individuals with Down Syndrome. The dreams you have for your child’s future doesn’t have to halt simply because they are born with something extra.

100 Signs (ASL-American Sign Language)  

Bill Vicars “100 Basic Signs” has been a life saver for us. We started working with Ellie at the age of 2, knowing that communication was going to be delayed. We frequently go back to this video as a refresher. You can check out his YouTube channel for more American Sign Language videos.

Wouldn't Change a Thing with Christina Perri

I love this video so much!! It brings tears to my eyes every single time I watch it. For those of you who are just beginning your journey, this is the beautiful space where open hearts soar. “Wouldn’t Change a Thing” blended with Christina Perri’s “A Thousand Years” is the perfect combination. A big thumbs up to the warrior mamas and their sweet kiddos in this video.