Meet Silah
Down Syndrome is a breeze which took us to the track of unconditional love. We learned to love, respect and share without expecting a reward or something in return.
I had no plans to share this, but after this recent incident, I feel this needs to be discussed and shared.
My second born has Down Syndrome. It is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21. It is typically associated with physical growth delays, characteristic facial features and mild to moderate intellectual disability.
My daughter was delivered at a well-known hospital in Pakistan, and my pregnancy was not smooth since day one. From a detailed anomaly scan to fetal echo, everything was done at the same well-equipped hospital, but nobody could diagnose that my daughter was going to have Down syndrome.
She was a full term baby and right after my delivery in the labor room, I got to know that the tiny lil angel I just delivered had down syndrome. I was shattered, broken, devastated, almost dead when this heartbreaking news was shared with me. Although my gynecologist still believed that my daughter was perfectly fine, her physical condition negated her.
My daughter’s vitals were not normal, she had low saturation and could not breathe properly without external support. She had severe pulmonary hypertension and three holes in her heart. She was transferred to another hospital after three days of admission at the one I delivered her because they didn’t have a ventilator available and there was a chance of deterioration in her condition.